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HELP US DEFEAT MSA NOW

Defeat Multiple System Atrophy (MSA) Canada/Vaincre L’atrophie Multisystématisée (AMS) Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the MSA community.

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WATCH CONFERENCE TALKS ON DIAGNOSIS, CURRENT TREATMENTS & MSA RESEARCH

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Help Us Support MSA Research in Canada!
Help Us Support MSA Patients in Canada!
Help Us Support MSA Awareness in Canada!
Help Us Educate Medical Professionals in Canada!

4 Ways to Support Our Efforts:

1) Create a Facebook Fundraiser: https://www.facebook.com/fund/defeatmsacanada/

2) Create a Canada Helps Fundraiser (dedications to a loved one are possible too): https://www.canadahelps.org/en/charities/defeat-msa-multiple-system-atrophy-canada/

2) Donate Directly to Our Secure Website (dedications to a loved one are possible too): www.msacanada.ca/donate-to-us/

4) Via Cheque, Send to: Defeat MSA Canada/Vaincre AMS Canada, 3041 Dougall Avenue, Suite 208, Windsor, Ontario N9E 1S3

HELP US GIVE HOPE. CLICK OUR LINKTREE TO CHOOSE ONE A FUNDRAISER: https://linktr.ee/defeatmsacanada

NO AMOUNT IS TOO SMALL – BECAUSE EVERY AMOUNT GIVES HOPE TO THOSE THAT NEED IT!

Help Put Canada on the MSA Map! Help All Those Affected By MSA in Canada!

NEWS FROM SOCIAL MEDIA

Defeat MSA Canada/Vaincre l’AMS Canada

2 weeks ago

<img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'">

CLICK PROFILE LINK TO REACH REGISTRATION- HURRY - REGISTER NOW - World’s Largest MSA Conference!- Free, Virtual, Multilingual & Multiple Time Zones! - Listen & Interact with the Experts: www.DefeatMSA.org/conference2021#defeatmsa #KickMSA #MSAUSA ATTENDEES CAN RECEIVE A PRINTED BOOKLET WITH MSA AWARENESS GIFTS (while supplies last, sorry due to shipping and covid delays, US only) ... See MoreSee Less

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Defeat MSA Canada/Vaincre l’AMS Canada

2 weeks ago

<img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'">

Chef Michael Smith is one of Canada’s best-known chefs with MSA Warrior and Defeat MSA/Vaincre AMS Board Member Kelly Murphy. Chef Smith is the host of numerous cooking shows seen on Food Network Canada and in more than 100 other countries. He is a member of the Order of Canada, Prince Edward Island’s food ambassador, a best-selling cookbook author, innkeeper, educator, professional chef and home cook. His ten cookbooks have all been best sellers and he regularly travels the globe hosting special culinary events. Thank you Chef Smith for #KickingMSA with the MSA Community! #defeatmsa #KickMSA #msaawareness#MSAcanada #defeatmsacanada #ChefSmith #canada ... See MoreSee Less

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Defeat MSA Canada/Vaincre l’AMS Canada

3 weeks ago

<img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'">

World’s Largest MSA Conference!- Free, Virtual & Multiple Time Zones! - Listen & Interact with Multiple Experts: www.DefeatMSA.org/conference2021#defeatmsa #KickMSA #MSA ... See MoreSee Less

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Defeat MSA Canada/Vaincre l’AMS Canada

4 weeks ago

<img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'" data-src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://scontent-ort2-1.xx.fbcdn.net/v/t1.6435-1/cp0/p50x50/66437542_676921892752674_2163392228339220480_n.jpg?_nc_cat=110&ccb=1-5&_nc_sid=dbb9e7&_nc_ohc=R5jnfhdYpsEAX_MzrM1&_nc_ht=scontent-ort2-1.xx&oh=f1cf251ba7324b107075ffaf180d4d39&oe=616DD2B8" title="Defeat MSA Canada/Vaincre l’AMS Canada" alt="Defeat MSA Canada/Vaincre l’AMS Canada" width=40 height=40 onerror="this.style.display='none'">

Dinner with a great advocate for our MSA warriors and all rare disease warriors Debbie Drell fromNational Organization for Rare Disorders, Inc. (NORD)& friends… ... See MoreSee Less

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MSA-AMS CanadaFollow

MSA-AMS CANADA - multiple system atrophy; leading the way to help Canadians with MSA...

<img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" alt="Canada_MSA_AMS" width="48" height="48">

MSA-AMS Canada @Canada_MSA_AMS·

Sep 24-Oct 2: Don't miss the world’s largest gathering of the #MultipleSystemAtrophy community! @defeatmsa will offer talks with the most diverse experts, some 42 speakers representing 5 continents delivering speeches in 8 different languages. http://www.defeatmsa.org/conference2021

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<img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" alt="Canada_MSA_AMS" width="48" height="48">

MSA-AMS Canada @Canada_MSA_AMS·

REGISTRATION CLOSING SOON! -VERY RARE opportunity to interact with world’s MSA experts! Register now - virtual & free!
—Sept 24-26: English, Spanish, French & Portuguese
—Sept 28-29: Spanish, Italian, French & English
—Oct 1-2: English & Chinese
http://www.defeatmsa.org/conference2021

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<img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" alt="Canada_MSA_AMS" width="48" height="48">

MSA-AMS Canada @Canada_MSA_AMS·

Dinner with a great advocate for our MSA warriors and all rare disease warriors Debbie Drell from
National Organization for Rare Disorders, Inc. (NORD)
& friends… https://www.instagram.com/p/CTDux8FMNsB/?utm_medium=twitter

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<img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img alt="Canada_MSA_AMS" width="48" height="48" data-src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" class="lazyload" src="data:image/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw=="><noscript><img src="https://pbs.twimg.com/profile_images/1148991338475655169/c23eoh8s_normal.jpg" alt="Canada_MSA_AMS" width="48" height="48">

MSA-AMS Canada @Canada_MSA_AMS·

Just posted a photo https://www.instagram.com/p/CTBJzINDPgI/?utm_medium=twitter

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MSA Research

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Help Raise More Public Awareness

Giving Programs

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LOOKING FOR OTHER WAYS TO GET INVOLVED?

LOOKING FOR OTHER WAYS TO GET INVOLVED?

MSA EXPERT
SPOTLIGHT

Wouter Peelaerts, PhD

Wouter Peelaerts, PhD

KU Leuven, Belgium

Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences from KU Leuven and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinson’s and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017–2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab of Dr. Patrik Brundin at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Alliance’s Scientific Research Section.

List of Publications

Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen – Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science. Vol 168. Pages 299-322.

Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally

Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.

Peelaerts W, Baekelandt V. 2016. ɑ-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256–274.

Spotlight Links

“Sticking With MSA” -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)

Fulbright grantee (2017–2018)

Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)

FWO postdoctoral fellowship (2017 – 2020)

Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under MSA Awareness tab or via its website: www.MSAshoe.org

#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA

Help Kick MSA, Host MSA Awareness Shoe!

<img width="325" height="316" src="https://www.msacanada.ca/wp-content/uploads/2020/05/MSA-shoe-logo-KickMSA-MSAshoe.png" alt="" title="MSA-shoe-logo-KickMSA-MSAshoe" srcset="https://www.msacanada.ca/wp-content/uploads/2020/05/MSA-shoe-logo-KickMSA-MSAshoe.png 325w, https://www.msacanada.ca/wp-content/uploads/2020/05/MSA-shoe-logo-KickMSA-MSAshoe-300x292.png 300w" sizes="(max-width: 325px) 100vw, 325px" class="wp-image-238208" />

<img width="975" height="714" src="https://msacanada.ca/wp-content/uploads/2019/03/msabanner.jpg" alt="" title="" srcset="https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner.jpg 975w, https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner-600x439.jpg 600w, https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner-300x220.jpg 300w, https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner-768x562.jpg 768w" sizes="(max-width: 975px) 100vw, 975px" class="wp-image-46831" />

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under the awareness tab or via its website: www.MSAshoe.org

#DefeatMSA #MSACanada #KickMSA #DeFeetMSA

Help Kick MSA, Host the MSA Awareness Shoe!

<img width="325" height="316" src="https://www.msacanada.ca/wp-content/uploads/2020/05/MSA-shoe-logo-KickMSA-MSAshoe.png" alt="" title="MSA-shoe-logo-KickMSA-MSAshoe" srcset="https://www.msacanada.ca/wp-content/uploads/2020/05/MSA-shoe-logo-KickMSA-MSAshoe.png 325w, https://www.msacanada.ca/wp-content/uploads/2020/05/MSA-shoe-logo-KickMSA-MSAshoe-300x292.png 300w" sizes="(max-width: 325px) 100vw, 325px" class="wp-image-238208" />

<img width="975" height="714" src="https://msacanada.ca/wp-content/uploads/2019/03/msabanner.jpg" alt="" title="" srcset="https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner.jpg 975w, https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner-600x439.jpg 600w, https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner-300x220.jpg 300w, https://www.msacanada.ca/wp-content/uploads/2019/03/msabanner-768x562.jpg 768w" sizes="(max-width: 975px) 100vw, 975px" class="wp-image-46831" />

Join the world-wide MSA Awareness initiative

BE A HOST

PATIENTS NEED OUR HELP

Defeat MSA Canada invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

Join the world-wide MSA Awareness initiative

BE A HOST

OUR LEGACY GRANTS

OUR

LEGACY

GRANTS

The Defeat MSA Canada special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $10,000 (Platinum), $8,000 (Gold), $5,000 (Silver) and $2,000 (Bronze) in addition to Legacy Grants starter fundraisers at $1000 each. Please email us: legacyfunds@MSAcanada.ca, if you are interested in finding out more about this lasting gift.

LEARN MORE

MSA BLOGS

Caregiver’s Blog

MSA AWARENESS WARRIORS ZOOM BACKGROUND

by ximpd | Mar 11, 2021
USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

by defeatmsa | Apr 9, 2020
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

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Researcher’s Blog

*NEW * RESEARCH UPDATE FROM BIOHAVEN RE: VERDIPERSTAT (BHV-3241)

by ximpd | May 19, 2021
Timeline: International Phase 3 Clinical Trial of Verdiperstat in Multiple System Atrophy "Top line results from the study are expected to be available in 3Q2021 and will help to characterize the potential benefits and risks of Verdiperstat in MSA. After the study...

POSSIBLE NEW DRUG

by ximpd | Mar 11, 2021
Curious about the possible new drug being studied that might slow MSA? See this graphic for information about the mechanism of action (MOA). For Research Updates & More, Register on the Hub: https://defeatmsa.org/research-registry/ #defeatmsa #kickmsa...

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Advocate’s Blog

Activists Profile: “Laughter is Indeed the Best Medicine” – Kathy and Karen’s Journey

by ximpd | Jun 30, 2021
It was 2010, with the holidays fast approaching. Kathy Samuel, Karen Olson’s sister, had just finished a 45-minute phone call with Karen’s doctor. “They told me we needed to say our goodbyes to her," Kathy said, remembering the day with vivid clarity. She called their...

REGISTER NOW – MSA VIRTUAL FREE CONFERENCE, SEPT 24-OCT 2

by ximpd | May 11, 2021
Defeat MSA Canada/Vaincre AMS Canada, Defeat MSA Alliance (US) and allied charities in the MSA United Consortium are pleased to announce the Second All-Community MSA Virtual Conference, Sept 24-Oct 2, 2021. This year's conference will include several exciting...

GET SOME GEAR & RAISE AWARENESS ALL YEAR LONG!

by ximpd | Mar 11, 2021
Defeat MSA Canada/Vaincre L’AMS Canada Board Member & MSA Patient Advocate Kelly Murphy tests out the new mug! Maybe a 'wee nip of something strong? Order One Now! www.MSAcanada.ca There are also online stores for some of our affiliated MSA United charites:...

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Patient’s Blog

ACTIVIST PROFILE: VALERIE GARNEAU

by ximpd | May 1, 2021
If there is one word to describe Valerie Garneau, it would be ‘relentless.’ Valerie along with her husband Joel serve on the board of directors for Defeat MSA/Vaincre AMS Canada. The members of her tight-knit, French-Canadian community would certainly agree with the...

New MSA/AMS Patient Advocate On National Canadian TV !!!

by ximpd | Aug 24, 2020
We are grateful to MSA/AMS Patient Advocate Valerie Garneau. Valerie is the new Patient Advocate & Board Member for Defeat MSA/Vaincre AMS Canada. She spoke on national French Canadian TV about Multiple System Atrophy to raise awareness! Thank you Valerie for your...

“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)

by defeatmsa | Apr 2, 2020
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...

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“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”

Elena Fracassa, MS

“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “

Dr. Pratik Bhattacharya, MD, MPH

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