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HELP USĀ DEFEAT MSA NOW
Defeat MSA Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.
MISSED THE MSA CONFERENCE?
CLICK BELOW TO WATCH ENTIRE CONFERENCE
PODCASTS
“Long Live The Brains”
Hosts
Philip Tipton, MD
&
Kandice Jacobs Robinson, LFDE
Fighting to Defeat MSA: Part 1 of 2
Fighting to Defeat MSA: Part 2 of 2
āSafety Issues in Multiple System Atrophyā
NEWS FROM SOCIAL MEDIA
#GivingTuesday #givingtuesday2020 is DECEMBER 1 - ALL FUNDS WILL BE EARMARKED FOR RESEARCH!
Read About Here:
www.msacanada.ca/announcing-defeat-msa-canada-givingtuesday-fundraiser-help-us/
Greetings Friends:
Please consider Defeat MSA Alliance (or associated charities for ppl outside the US) if you are doing holiday giving or fundraising this year.
ā Funded Recent Clinical & Genetic Research Studies
ā Sponsor of Multiple Support Groups (worldwide, video, online & onsite)
ā.Host of Only Equipment Loaner Closet in North America
ā Held Worldās First Virtual MSA Conference (Sept 2020)
ā Developed First MSA Support & Research Apps
ā All charity admins connected by family to MSA
ā Advocate for MSA Cause (medical & government)
ā No paid staff or hired management companies
ā Co-Director: Practicing Neurologist who treats MSA patients
ā Sponsor of World Campaign to raise awareness (msa awareness shoe)
ā Led worldwide fundraising campaigns to fund first feature film documentary about MSA
ā Developed first global research & support consortium: MSA United International
ā Sponsor of MSA Research meeting (postponed due to pandemic)
ā Recognized as 2020 Great Nonprofit & Highest Rating: the Guidestar Platinum Seal for Financials
DONATE HERE USA:
www.DefeatMSA.org/donate-to-us/
For Defeat MSA/Vaincre AMS Canada: www.MSAcanada.ca/donate-to-us/
For Defeat MSA Down Under (AU & NZ):
www.MSAdownunder.org.au/donate-to-us/
www.facebook.com/308172972623089/posts/2464987646941600/?d=nāCan a diabetes drug slow or stop a devastating neurodegenerative disease?ā
Defeat MSA Alliance & the Van Andel Research Institute (Van Andel Institute) & the Msa Trust partners to sponsor a New Drug Study to Help Those With MSA...
www.vai.org/can-a-diabetes-drug-slow-or-stop-a-devastating-neurodegenerative-disease/
From left to right: VAI Chief Development Officer Brett Holleman, Defeat MSA Alliance Director Philip Fortier, VAI Associate Director of Research Dr. Patrik Brundin and VAI Postdoctoral Fellow Dr. Wouter Peelaerts at the 2019 Grand Challenges in Parkinsonās Disease symposium.
Dedicated to Defeating MSA/Vaincre AMS Up Yonder - Canada!
#defeat msa #canadašØš¦ #msa @ Windsor, Ontario https://www.instagram.com/p/CGkxxR-swhX/?igshid=1iakb6jw9ijoz
Despite being found in only a small number of patients, this is an important finding (of course, needs to be replicated). @DefeatMsa @MSAshoe https://onlinelibrary.wiley.com/doi/10.1002/ana.25902
Selling on eBay? Please help us defeat MSA! https://charity.ebay.com/charity/Defeat-MSA-Alliance/1520593
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
MSA EXPERT
SPOTLIGHT
Wouter Peelaerts, PhD
KU Leuven, Belgium
Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences fromĀ KU LeuvenĀ and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinsonās and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017ā2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab ofĀ Dr. Patrik BrundinĀ at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Allianceās Scientific Research Section.
List of Publications
Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen ā Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science.Ā Vol 168.Ā Pages 299-322.
Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally
Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.
Peelaerts W, Baekelandt V. 2016. É-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256ā274.
Spotlight Links
āSticking With MSAā -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)
Fulbright grantee (2017ā2018)
Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)
FWO postdoctoral fellowship (2017 ā 2020)
Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under MSA Awareness tab or via its website: www.MSAshoe.org
#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under the awareness tab or via its website: www.MSAshoe.org
#DefeatMSA #MSACanada #KickMSA #DeFeetMSA
Join the world-wide MSA AwarenessĀ initiative
PATIENTS NEED OUR HELP
Defeat MSA Canada invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
Join the world-wide MSA AwarenessĀ initiative
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA Canada special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $10,000 (Platinum), $8,000 (Gold), $5,000 (Silver) and $2,000 (Bronze) in addition to Legacy Grants starter fundraisers at $1000 each. Please email us: legacyfunds@MSAcanada.ca, if you are interested in finding out more about this lasting gift.
MSA BLOGSĀ
Caregiver’s Blog
āAre we there yet?..Noā- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.Ā Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.Ā Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
Researcher’s Blog
“ANNOUNCING NEW MSA GENETIC STUDY IN CANADA”
November 23, 2020 WINDSOR, ON - Defeat MSA Canada/Vaincre LāAMS Canada, Defeat MSA Alliance: Defeat Multiple System Atrophy and MSA United International enthusiastically announce a new genetic study in partnership with the Canadian Open Parkinson's Network (C-OPN)....
āREM Sleep Behavior Disorder, Genetics and MSAā By Lynne Krohn (McGill, MontrĆ©al)
By Lynne Krohn, PhD student, McGill University (MontrƩal, QC, Canada) A major goal in MSA research is to develop successful clinical interventions which can stop or slow the disease progression. Currently, there are options available for symptomatic treatment of MSA,...
Advocate’s Blog
Announcing Defeat MSA Canada #GivingTuesday Fundraiser – Help Us!
Announcing Defeat MSA Canada #GivingTuesday 2020 Facebook or Canada Helps Fundraiser!Ā December 1, 2020 is #GivingTuesday. Please consider helping Defeat MSA Canada with a Facebook Fundraiser, Canada Helps Fundraiser or a Direct Donation!Ā We Need Your Support This...
BREAKING NEWS ā GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE
Defeat MSA Alliance and the MSA United International Consortium charities are excited to announce the Worldās First MSA Virtual Conference and it is FREE and includes a live streaming documentary, "A Day for Susana" (Um Dia Para Susana) - the first feature film about...
Is It All in the Head? – Diagnosis & Defeat MSA
Patient’s Blog
New MSA/AMS Patient Advocate On National Canadian TV !!!
We are grateful to MSA/AMS Patient Advocate Valerie Garneau. Valerie is the new Patient Advocate & Board Member for Defeat MSA/Vaincre AMS Canada. She spoke on national French Canadian TV about Multiple System Atrophy to raise awareness! Thank you Valerie for your...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”
Elena Fracassa, MS
“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
LOOKING FOR OTHER WAYS TO GET INVOLVED?
JOIN THE MOVEMENT TOĀ #DEFEATMSA
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MSA Awareness Stickers
Brain Hub Flyer (English)
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Patient Card (US Edition)
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