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HELP US DEFEAT MSA NOW
Defeat Multiple System Atrophy (MSA) Canada/Vaincre L’atrophie Multisystématisée (AMS) Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the MSA community.
GIVE HELP, GIVE HOPE
- Help Us Support MSA Research in Canada!
- Help Us Support MSA Patients in Canada!
- Help Us Support MSA Awareness in Canada!
- Help Us Educate Medical Professionals in Canada!
4 Ways to Support Our Efforts:
1) Create a Facebook Fundraiser: https://www.facebook.com/fund/defeatmsacanada/
2) Create a Canada Helps Fundraiser (dedications to a loved one are possible too): https://www.canadahelps.org/en/charities/defeat-msa-multiple-system-atrophy-canada/
2) Donate Directly to Our Secure Website (dedications to a loved one are possible too): www.msacanada.ca/donate-to-us/
4) Via Cheque, Send to: Defeat MSA Canada/Vaincre AMS Canada, 3041 Dougall Avenue, Suite 208, Windsor, Ontario N9E 1S3
HELP US GIVE HOPE. CLICK OUR LINKTREE TO CHOOSE ONE A FUNDRAISER: https://linktr.ee/defeatmsacanada
NO AMOUNT IS TOO SMALL – BECAUSE EVERY AMOUNT GIVES HOPE TO THOSE THAT NEED IT!
Help Put Canada on the MSA Map! Help All Those Affected By MSA in Canada!
NEWS FROM SOCIAL MEDIA
Defeat MSA Canada/Vaincre l’AMS Canada
Defeat Multiple System Atrophy (MSA) Canada/Vaincre Atrophie Multisystématisée (AMS) Canada aspires to balance support, education, awareness and research. Help Us Speak for Those That Cannot!
Use of levodopa-carbidopa intestinal gel to treat patients with multiple system atrophy
www.sciencedirect.com
Levodopa-carbidopa intestinal gel (LCIG) is an effective treatment for late-stage Parkinson's disease (PD) but had not been evaluated in levodopa-resp...
#Pyramidal sign is a motor feature in @GreenJournal & @MDJ_Journal criteria for #MSA dx. Why is it important to look for? 🧐
🧠Could it be explained by #GCI severity?
🗣️Is it related to stridor, autonomic, and subtypes?
Pls see our article @ANA_journals http://doi.org/10.1002/acn3.51576
Just posted a photo @ Bispebjerg, København, Denmark https://www.instagram.com/p/CdFBFgDsMyn/?igshid=YTgzYjQ4ZTY=
Starting @Roche on Monday. Excited about this new chapter! https://twitter.com/journal_PD/status/1514921795224281092
Our Co-Editor-in-Chief Patrik Brundin (@BrundinPatrik) has accepted a prestigious new position at @Roche & is stepping down from Journal of Parkinson's Disease. The whole team would like to thank him for his years of leadership and dedication! Read more: http://bit.ly/JPD-PatrikBrundin-news
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
MSA EXPERT
SPOTLIGHT
Wouter Peelaerts, PhD
KU Leuven, Belgium
Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences from KU Leuven and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinson’s and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017–2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab of Dr. Patrik Brundin at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Alliance’s Scientific Research Section.
List of Publications
Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen – Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science. Vol 168. Pages 299-322.
Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally
Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.
Peelaerts W, Baekelandt V. 2016. ɑ-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256–274.
Spotlight Links
“Sticking With MSA” -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)
Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)
FWO postdoctoral fellowship (2017 – 2020)
Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under MSA Awareness tab or via its website: www.MSAshoe.org
#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under the awareness tab or via its website: www.MSAshoe.org
#DefeatMSA #MSACanada #KickMSA #DeFeetMSA
Join the world-wide MSA Awareness initiative
PATIENTS NEED OUR HELP
Defeat MSA Canada invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
Join the world-wide MSA Awareness initiative
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA Canada special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $10,000 (Platinum), $8,000 (Gold), $5,000 (Silver) and $2,000 (Bronze) in addition to Legacy Grants starter fundraisers at $1000 each. Please email us: legacyfunds@MSAcanada.ca, if you are interested in finding out more about this lasting gift.
MSA BLOGS
Caregiver’s Blog
“On the Importance of showing up & trying” – By Kimberly Bohannon
Kimberly S. Bohannon was a caregiver to her husband Steve, who passed from MSA at the age of 49. She regularly writes about her experiences in a blog on Medium. Today, for the first time, we share an excerpt from Kimberly’s blog about caring for her husband. Are you...
MSA AWARENESS WARRIORS ZOOM BACKGROUND
USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero
Researcher’s Blog
MISE À JOUR DES NOUVELLES DE LA RECHERCHE 2022
PROMISING NEW RESEARCH FUNDED 2022
#defeatmsa #kickmsa #MSAresearch #newresearch #MultipleSystemAtrophy #msaunited #Consortium Help Us - Fund Research Now! Choose A Charity in Our Consortium: www.msaunited.org
Advocate’s Blog
HAPPY NEW YEAR FROM ALL OF US!
HAPPY NEW YEAR!! May this year increase your hope and happiness! Let’s go forward together to Defeat MSA forever! We thank you for your continued support! www.msacanada.ca/donate-to-us/ #defeatmsa #kickmsa
GIVE THE GIFT OF AWARENESS THIS HOLIDAY!
GIVE AWARENESS FOR THE HOLIDAYS! Help Us Defeat MSA Now! CANADA STORE: https://www.msacanada.ca/shop/
GIVING TUESDAY IS NOVEMBER 30 – PLEASE CONSIDER US!
Giving Tuesday is Nov 30; Help Us Defeat MSA Now! Visit Us To Donate: www.MSAcanada.ca/donate-to-us/ THANK YOU - WE CANNOT CONTINUE OUR EFFORTS WITHOUT YOU!
Patient’s Blog
On Rainbows and Looking Up with MSA
Good Perspective from MSA Warrior & Defeat MSA Canada/Vaincre l’AMS Canada Board Member @Kelly Murphy!
ACTIVIST PROFILE: VALERIE GARNEAU
If there is one word to describe Valerie Garneau, it would be ‘relentless.’ Valerie along with her husband Joel serve on the board of directors for Defeat MSA/Vaincre AMS Canada. The members of her tight-knit, French-Canadian community would certainly agree with the...
New MSA/AMS Patient Advocate On National Canadian TV !!!
We are grateful to MSA/AMS Patient Advocate Valerie Garneau. Valerie is the new Patient Advocate & Board Member for Defeat MSA/Vaincre AMS Canada. She spoke on national French Canadian TV about Multiple System Atrophy to raise awareness! Thank you Valerie for your...
“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”
Elena Fracassa, MS
“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
LOOKING FOR OTHER WAYS TO GET INVOLVED?
JOIN THE MOVEMENT TO #DEFEATMSA
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Resources & Downloads
Overview Known MSA Treatments
Known Treatments AMS (French)
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Charity Brochure (French)
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Patient Brochure (French)
MSA Awareness Stickers
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