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HELP USĀ DEFEAT MSA NOW
Defeat MSA Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.
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- Help Us Support MSA Research in Canada!
- Help Us Support MSA Patients in Canada!
- Help Us Support MSA Awareness in Canada!
- Help Us Educate Medical Professionals in Canada!
4 Ways to Support Our Efforts:
1) Create a Facebook Fundraiser: https://www.facebook.com/fund/defeatmsacanada/
2) Create a Canada Helps Fundraiser (dedications to a loved one are possible too): https://www.canadahelps.org/en/charities/defeat-msa-multiple-system-atrophy-canada/
2) Donate Directly to Our Secure Website (dedications to a loved one are possible too): www.msacanada.ca/donate-to-us/
4) Via Cheque, Send to:Ā Defeat MSA Canada/Vaincre AMS Canada, Ā 3041 Dougall Avenue, Suite 208, Windsor, Ontario N9E 1S3
HELP US GIVE HOPE.Ā CLICK OUR LINKTREE TO CHOOSE ONE A FUNDRAISER:Ā https://linktr.ee/defeatmsacanada
NO AMOUNT IS TOO SMALL ā BECAUSE EVERY AMOUNT GIVES HOPE TO THOSE THAT NEED IT!Ā
Help Put Canada on the MSA Map! Help All Those Affected By MSA in Canada!
NEWS FROM SOCIAL MEDIA
*NEW* - Defeat MSA Alliance Request for Research Proposals 2021 | Defeat MSA Alliance
defeatmsa.org
FOR IMMEDIATE RELEASE Detroit, Michigan, July 7, 2021--- Defeat MSA Alliance and partnering charities in the MSA United Consortium have announced the first round of the 2021 seed-grant program. Funded proposals will receive a one-year grant of up to $50,000 USD/$60,000 CDN. Defeat MSA Alliance ...
Alterity Therapeutics Update on ATH434 - July 1, 2021 | Defeat MSA Alliance
defeatmsa.org
Defeat MSA Alliance Board of Directors is pleased to report some good news from Alterity Therapeutics on ATH434, a new drug being developed by the company for the treatment of Multiple System Atrophy. Ā "Alterity is on track to launch the Phase 2 trial of its lead clinical candidate AT ...
https://defeatmsa.org/new-request-for-proposals-2021/
LETTER OF INTENT DEADLINE: JULY 31 https://defeatmsa.org/new-request-for-proposals-2021/
@NeilChatterBox @LashuelLab @Hlashuel @ZivGanOr @ChicagoMovemen1 @foltynie @AMahajanMD @saobettencourt @UsmanSaeed71 @InMemoriamMSA @msadownunder @Canada_MSA_AMS @MSAtrust @MSAshoe @CurePSPJaclyn @CurePSPJaclyn @CurePSP @Korthlab_HHU @proukakis @PSPAwareness @touteiro https://twitter.com/DefeatMsa/status/1413234416328003589
https://defeatmsa.org/new-request-for-proposals-2021/ @JoelWattsLab @Woerman_Lab @MXHend @peelaerts_w @LynneKrohn @alpha_synuclein @synuclein2019 @BrundinPatrik
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
MSA EXPERT
SPOTLIGHT
Wouter Peelaerts, PhD
KU Leuven, Belgium
Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences fromĀ KU LeuvenĀ and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinsonās and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017ā2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab ofĀ Dr. Patrik BrundinĀ at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Allianceās Scientific Research Section.
List of Publications
Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen ā Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science.Ā Vol 168.Ā Pages 299-322.
Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally
Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.
Peelaerts W, Baekelandt V. 2016. É-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256ā274.
Spotlight Links
āSticking With MSAā -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)
Fulbright grantee (2017ā2018)
Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)
FWO postdoctoral fellowship (2017 ā 2020)
Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under MSA Awareness tab or via its website: www.MSAshoe.org
#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under the awareness tab or via its website: www.MSAshoe.org
#DefeatMSA #MSACanada #KickMSA #DeFeetMSA
Join the world-wide MSA AwarenessĀ initiative
PATIENTS NEED OUR HELP
Defeat MSA Canada invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
Join the world-wide MSA AwarenessĀ initiative
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA Canada special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $10,000 (Platinum), $8,000 (Gold), $5,000 (Silver) and $2,000 (Bronze) in addition to Legacy Grants starter fundraisers at $1000 each. Please email us: legacyfunds@MSAcanada.ca, if you are interested in finding out more about this lasting gift.
MSA BLOGSĀ
Caregiver’s Blog
MSA AWARENESS WARRIORS ZOOM BACKGROUND
USE ZOOM? DOWNLOAD A BACKGROUND WHICH HONORS ALL THOSE BATTLING MSA - FOR MSA AWARENESS MONTH! #defeatmsa #kickmsa #msawarriors #zoomlife #zoombackground #msaawarenessmonth #msaawareness #MultipleSystemAtrophy #msaheroes #msahero
āAre we there yet?..Noā- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.Ā Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
Researcher’s Blog
*NEW * RESEARCH UPDATE FROM BIOHAVEN RE: VERDIPERSTAT (BHV-3241)
Timeline: International Phase 3 Clinical Trial of Verdiperstat in Multiple System Atrophy "Top line results from the study are expected to be available in 3Q2021 and will help to characterize the potential benefits and risks of Verdiperstat in MSA. After the study...
POSSIBLE NEW DRUG
Curious about the possible new drug being studied that might slow MSA? See this graphic for information about the mechanism of action (MOA). For Research Updates & More, Register on the Hub: https://defeatmsa.org/research-registry/ #defeatmsa #kickmsa...
Advocate’s Blog
Activists Profile: “Laughter is Indeed the Best Medicine” – Kathy and Karen’s Journey
It was 2010, with the holidays fast approaching. Kathy Samuel, Karen Olsonās sister, had just finished a 45-minute phone call with Karenās doctor. āThey told me we needed to say our goodbyes to her," Kathy said, remembering the day with vivid clarity. She called their...
SAVE THE DATE: MSA ANNUAL VIRTUAL CONFERENCE, OCTOBER 1-3, 2021
Defeat MSA Canada/Vaincre AMS Canada, Defeat MSA Alliance (US) and allied charities in the MSA United Consortium are pleased to announce the second Annual All-Community MSA Conference to be held October 1-3, 2021. This year's conference will include several exciting...
GET SOME GEAR & RAISE AWARENESS ALL YEAR LONG!
Defeat MSA Canada/Vaincre LāAMS Canada Board Member & MSA Patient Advocate Kelly Murphy tests out the new mug! Maybe a 'wee nip of something strong?Ā Order One Now! www.MSAcanada.ca There are also online stores for some of our affiliated MSA United charites:...
Patient’s Blog
ACTIVIST PROFILE: VALERIE GARNEAU
If there is one word to describe Valerie Garneau, it would be ārelentless.ā Valerie along with her husband Joel serve on the board of directors for Defeat MSA/Vaincre AMS Canada. The members of her tight-knit, French-Canadian community would certainly agree with the...
New MSA/AMS Patient Advocate On National Canadian TV !!!
We are grateful to MSA/AMS Patient Advocate Valerie Garneau. Valerie is the new Patient Advocate & Board Member for Defeat MSA/Vaincre AMS Canada. She spoke on national French Canadian TV about Multiple System Atrophy to raise awareness! Thank you Valerie for your...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”
Elena Fracassa, MS
“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
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