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HELP USĀ DEFEAT MSA NOW
Defeat MSA Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.
THANK YOUĀ EVERYONEĀ ON THEĀ FRONTLINES
REQUEST A FREE FRONTLINE THANK YOU LAWN SIGN (ONLY AVAILABLE FOR CERTAIN MICHIGAN CITIES, WHILE SUPPLIES LAST)Ā Ā Ā Ā ORĀ Ā Ā DOWNLOAD A WINDOW SIGN TO THANK OUR FRONTLINE WORKERS FIGHTING AGAINST COVID-19!
#STAYHOMEĀ Ā Ā #SAVELIVESĀ Ā Ā #COVID19
PODCASTS
“Long Live The Brains”
Hosts
Philip Tipton, MD
&
Kandice Jacobs Robinson, LFDE
Fighting to Defeat MSA: Part 1 of 2
Fighting to Defeat MSA: Part 2 of 2
āSafety Issues in Multiple System Atrophyā
NEWS FROM SOCIAL MEDIA
Missed the first virtual MSA conference?
Here is the talk on speech and swallowing by two sisters that have a direct connection to MSA and have treated clients with MSA.
defeatmsa.org/on-speech-swallowing-msa-conference-pt-7/
"On Speech & Swallowing" - (MSA Conference, Pt 6) | Defeat MSA Alliance
defeatmsa.org
Panel 1: Speech & Swallowing - Jennifer Kileny, SLP and Rebecca Wallace, SLP youtu.be/zncC67hP7rEFOR ANYONE WHO MISSED THE LIVE STREAMING SHOW TONIGHT OF āA DAY FOR SUSANAā.....
We are planning an encore showing soon!
Also, the entire conference including most of the well attended Q & A sessions (100s of people) with the doctors and researchers was recorded and will be provided for all....
Structures of Ī±-synuclein filaments from multiple system atrophy | Nature https://www.nature.com/articles/s41586-020-2317-6
MSA Research
Patient Programs
MSA Education
Public Awareness
Giving Programs
LOOKING FOR OTHER WAYS TO GET INVOLVED?
LOOKING FOR OTHER WAYS TO GET INVOLVED?
MSA EXPERT
SPOTLIGHT
Patrik Brundin, M.D., Ph.D.
Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan
Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinsonās and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of ParkinsonāsĀ as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the āprion-likeā hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinsonās disease and related diseases such as Multiple System Atrophy.
List of Publications
Spotlight Links
- “Life on the river” – Reflection by Dr. Patrik Brundin in The Lanclet (neurology journal)
- Ā The Patrik Brundin Lab (VAI)
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under MSA Awareness tab or via its website: www.MSAshoe.org
#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA
about the
Defeat MSA Awareness Shoe – #KickMSA
The Defeat MSA Awareness Shoe ā¢ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!
To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under the awareness tab or via its website: www.MSAshoe.org
#DefeatMSA #MSACanada #KickMSA #DeFeetMSA
Join the world-wide MSA AwarenessĀ initiative
PATIENTS NEED OUR HELP
Defeat MSA Canada invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!
Join the world-wide MSA AwarenessĀ initiative
OUR LEGACY GRANTS
OUR
LEGACY
GRANTS
The Defeat MSA Canada special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $10,000 (Platinum), $8,000 (Gold), $5,000 (Silver) and $2,000 (Bronze) in addition to Legacy Grants starter fundraisers at $1000 each. Please email us: legacyfunds@MSAcanada.ca, if you are interested in finding out more about this lasting gift.
MSA BLOGSĀ
Caregiver’s Blog
āAre we there yet?..Noā- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.Ā Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.Ā Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
Researcher’s Blog
SEMINAR: āA-Syn Conformational Strains and Patient Perspectiveā
MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinsonās UK. Beverlyās presentation describes the...
“A Path Forward” – Dr. Amanda Woerman (University of Massachusetts, Amherst)
Multiple system atrophy (MSA) is a progressive neurodegenerative disease that affects a key area of the brain responsible for regulating vital bodily functions. As a result, patients with MSA develop orthostatic hypotension (a drop in blood pressure when moving from...
Advocate’s Blog
BREAKING NEWS ā GLOBAL VIRTUAL MSA CONFERENCE, SEPTEMBER 19, 2020 – FREE, INFORMATIVE & SAFE
Defeat MSA Alliance and the MSA United International Consortium charities are excited to announce the Worldās First MSA Virtual Conference and it is FREE and includes a live streaming documentary, "A Day for Susana" (Um Dia Para Susana) - the first feature film about...
Is It All in the Head? – Diagnosis & Defeat MSA
āDefeat MSA Down Under Announces New Global Research Consortiumā
FOR IMMEDIATE RELEASE, 7/16/20 āDefeat MSA Canada Announces New Global Research Consortiumā DETROIT, MIāDefeat MSA Canada/Vaincre AMS Canada announces the formation of a new global consortium of charities for people living with Multiple System...
Patient’s Blog
New MSA/AMS Patient Advocate On National Canadian TV !!!
We are grateful to MSA/AMS Patient Advocate Valerie Garneau. Valerie is the new Patient Advocate & Board Member for Defeat MSA/Vaincre AMS Canada. She spoke on national French Canadian TV about Multiple System Atrophy to raise awareness! Thank you Valerie for your...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”
Elena Fracassa, MS
“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
LOOKING FOR OTHER WAYS TO GET INVOLVED?
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