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HELP US DEFEAT MSA NOW

Defeat MSA Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness and nurture promising research.

THANK YOU  EVERYONE  ON THE  FRONTLINES

REQUEST A FREE FRONTLINE THANK YOU LAWN SIGN (ONLY AVAILABLE FOR CERTAIN MICHIGAN CITIES, WHILE SUPPLIES LAST)     OR    DOWNLOAD A WINDOW SIGN TO THANK OUR FRONTLINE WORKERS FIGHTING AGAINST COVID-19!

#STAYHOME    #SAVELIVES    #COVID19


PODCASTS

“Long Live The Brains”

Hosts

Philip Tipton, MD

&

Kandice Jacobs Robinson, LFDE


Fighting to Defeat MSA: Part 1 of 2

Fighting to Defeat MSA: Part 2 of 2

“Safety Issues in Multiple System Atrophy”

NEWS FROM SOCIAL MEDIA

GET TO KNOW US - 2020 BOARD OF DIRECTORS: www.MSAcanada.ca

#msacanada #vaincreams #defeatmsa #mapleleaf #canada #msa #ams
...

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Our sister charity in Spain, Asociación Española Síndrome Shy Drager – Atrofia Multisistémica (ASYD) published this video in honor of World MSA Day, 3 October 2020. THANK YOU FOR ALL YOUR EFFORTS TO HELP SPANISH SPEAKING MSA PATIENTS & THEIR CAREGIVERS AROUND THE WORLD!

💜 ASYD Message to the World:
We celebrate together, with all the AMS/MSA families around the world, the day of the AMS / MSA Multisystemic Atrophy (formerly Shy-Drager). We have an important mission behind the global consortium of united charities, of which ASYD is a part, the Multiple System Atrophy United International, with one collective purpose: To support patients diagnosed with AMS / MSA, Collaborate with medical professionals , Increase public awareness and Promote new scientific research that will help provide the best possible quality of life for those affected by Multisystemic Atrophy.

youtu.be/eMxG6EtFlc4

Please Watch Their Video & Like Their Channel! #defeatmsa #asyd #msaunited
...

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Dedicated to Defeating MSA/Vaincre AMS Up Yonder - Canada!
#defeat msa #canada🇨🇦 #msa @ Windsor, Ontario https://www.instagram.com/p/CGkxxR-swhX/?igshid=1iakb6jw9ijoz

Despite being found in only a small number of patients, this is an important finding (of course, needs to be replicated). @DefeatMsa @MSAshoe https://onlinelibrary.wiley.com/doi/10.1002/ana.25902

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LOOKING FOR OTHER WAYS TO GET INVOLVED?

LOOKING FOR OTHER WAYS TO GET INVOLVED?

MSA EXPERT
SPOTLIGHT

Patrik Brundin, M.D., Ph.D.

Patrik Brundin, M.D., Ph.D.

Director, Center for Neurodegenerative Science, Van Andel Institute, Grand Rapids, Michigan

Dr. Patrik Brundin is one of the top cited researchers in the field of neuroscience with more than 350 publications on Parkinson’s and related diseases. He has 35 years of experience studying neurodegenerative diseases, disease pathogenesis and therapeutic neural transplantation into people. His current research focuses on pathogenic mechanisms of Parkinson’s  as well as the development of new therapies that slow or stop disease progression or that repair damaged brain circuits. He was among the first to articulate the “prion-like” hypothesis, which describes how abnormal proteins related to the disease spread from cell to cell in the brain, causing the cellular damage that perpetuates Parkinson’s disease and related diseases such as Multiple System Atrophy.

List of Publications

Scholia List of Publications

Spotlight Links

 

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under MSA Awareness tab or via its website: www.MSAshoe.org

#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA

about the

Defeat MSA Awareness Shoe – #KickMSA

The Defeat MSA Awareness Shoe ™ has traveled to multiple countries, rubbed shoulders with some notable people and visited many famous landmarks. The Shoe is a tool for spreading MSA awareness, increasing support for MSA patients and their caregivers and fighting MSA by raising vital research dollars. It’s journey is undertaken in memory of all those that have died due to MSA and in support of all those presently fighting Multiple System Atrophy!

To date, the Shoe has “Kicked MSA” in many countries around the world. Learn more about the story and the globetrotting journey of the MSA Awareness Shoe under the awareness tab or via its website: www.MSAshoe.org

#DefeatMSA #MSACanada #KickMSA #DeFeetMSA

Join the world-wide MSA Awareness initiative

PATIENTS NEED OUR HELP

Defeat MSA Canada invites all our friends and allies, around the world, to join us in this noble fight, to speak for those who cannot, with one mind, one heart and one voice: to defeat MSA forever!

Join the world-wide MSA Awareness initiative

OUR LEGACY GRANTS

OUR

LEGACY

GRANTS

The Defeat MSA Canada special Individual Named Legacy Grants program enables donors to fund a scientific research, medical education, patient support or public awareness grant and name it in their own name, in tribute to someone or in memory of a loved one. The Legacy Grants program designates four levels of grants: $10,000 (Platinum), $8,000 (Gold), $5,000 (Silver) and $2,000 (Bronze) in addition to Legacy Grants starter fundraisers at $1000 each. Please email us: legacyfunds@MSAcanada.ca, if you are interested in finding out more about this lasting gift.

MSA BLOGS 

Caregiver’s Blog

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)

Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip.  Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...

Researcher’s Blog

SEMINAR: “A-Syn Conformational Strains and Patient Perspective”

SEMINAR: “A-Syn Conformational Strains and Patient Perspective”

MSA Researcher Raphaella So, PhD candidate (Toronto), and Defeat MSA Patient Advocate Beverly K. Wilson offer some informed insights on Multiple System Atrophy in a recent talk sponsored by our friends at Cure Parkinson’s UK. Beverly’s presentation describes the...

Advocate’s Blog

Patient’s Blog

New MSA/AMS Patient Advocate On National Canadian TV !!!

New MSA/AMS Patient Advocate On National Canadian TV !!!

We are grateful to MSA/AMS Patient Advocate Valerie Garneau. Valerie is the new Patient Advocate & Board Member for Defeat MSA/Vaincre AMS Canada. She spoke on national French Canadian TV about Multiple System Atrophy to raise awareness! Thank you Valerie for your...

“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”

Elena Fracassa, MS

“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “

Dr. Pratik Bhattacharya, MD, MPH

LOOKING FOR OTHER WAYS TO GET INVOLVED?

JOIN THE MOVEMENT TO #DEFEATMSA

 

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