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OUR
MISSION

Realising that much of the current attention is focused on more widely known diseases, Multiple System Atrophy is overlooked.  MSA patients are confronted with a dim prognosis and left with few options.  As an essential member of the MSA United Consortium, Defeat Multiple System Atrophy Canada – Vaincre L’Atrophie Multisystématisée Canada is an inclusive Canadian registered charity (number: 758784284RR0001) that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the MSA community. Staffed entirely by a group of volunteers, Defeat MSA Canada – Vaincre L’AMS Canada aims to achieve a five-fold mission:

  • To build a world that truly supports people with MSA
  • To foster better medical education about MSA
  • To increase public awareness about living with MSA
  • To cultivate promising research into treatments and slowing MSA
  • To advance the interests of all people challenged by MSA

    Defeat MSA Canada – Vaincre L’AMS Canada invites all people, around the world, to join us in this noble fight: to speak for those who cannot, with one mind, one heart and one voice: to Defeat MSA forever!

    FOR QUESTIONS, PLEASE REACH US AT:

    DEFEATMSA@GMAIL.COM

    OR

    DIRECTOR@MSACANADA.CA

    AWARENESS. ALLEVIATION. ADVANCEMENT.

    OUR APPROACH

    OUR PROMISE

    We promise to work towards raising awareness within the medical profession and in society about Multiple System Atrophy and the everyday challenges faced by people living with it. We promise to help create a network of support for patients living with Multiple System Atrophy and their caregivers. We promise to foster a free and open dialogue that serves to advance scientific research. We promise to conduct our activities with the highest of professional ethics, organizational integrity and financial transparency. With confidence, and together with other like-minded charities, we will build a coalition of patients, caregivers, researchers, donors and policy-makers in an effort to pursue our common cause – to win the battle and forever defeat Multiple System Atrophy.

    #KICKMSA #DefeatMSACnd #MSAawareness #MSACanada #MSAAngels

    BOARD OF
    DIRECTORS

    Michelle Craigen, MS

    Member, Board of Directors; Events Planning Advisor

    Bracebridge, Ontario

    Philip M. Fortier, MA

    Director, Board of Directors; Member, MSA United Representative Council

    University of Detroit Mercy, Detroit, Michigan

    Beth & Steve Foster

    Beth Foster

    Vice-Chair/Secretary, Board of Directors; Events & Fundraiser Advisor (Pictured with Husband Steve, RIP)

    Aylmer, Ontario

    Mark Lassam, CPA, CA

    Member, Board of Directors; Finances Advisor

    St. Thomas, Ontario

    Kelly Murphy

    Member, Board of Directors; MSA Patient Advocate

    Tyrone, Ontario, Canada

    Kathy Samuel

    Kathy Samuel

    Member, Board of Directors; Events Planning Advisor

    Victoria, British Columbia

    Mitch & Christina Torabi

    Members, Board of Directors; Events Planning & Partnerships Advisors

    Richmond Hill, Ontario

    Edwin B. George II, MD, PhD

    Chair, Medical Resesarch Advisory Board; Member, Board of Directors

    Director of Movement Disorders, Wayne State University Detroit, Michigan

    Pratik D. Bhattacharya, MD, MPH

    Treasurer, Board of Directors; Member, Scientific Research Advisory Board, Medical Research Advisory Board

    Neurologist, Saint Joseph Mercy Oakland, Trinity Health, Pontiac, Michigan

    Wouter Peelaerts, MS, PhD

    Chair, Scientific Research Advisory Board; Member, Board of Directors

    Research Group for Neurobiology and Gene Therapy, KU Leuven, Belgium

    Valérie Garneau

    Member, Board of Directors; MSA Patient Advocate

    Lévis, Quebec

    Joel Philibert

    Member, Board of Directors; MSA Caregiver Advocate

    Lévis, Quebec

    Val Harper

    Member, Board of Directors; MSA Caregiver Advocate

    Winnipeg, Manitoba

    IN HONOR OF ALL OUR

    MSA WARRIORS

    Dedicated to Family Members of Our Board Members

    Charlene Soleau

    First Patient Advocate

    Fredericton, NB

    *All board members and research advisors are volunteers. Defeat MSA Canada has no paid staff or contracted employees and each board member is passionately driven by their personal or family connection to the disease.

    LOOKING FOR OTHER WAYS TO GET INVOLVED?

    JOIN THE MOVEMENT TO #DEFEATMSA

     

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    Copyright 2020 | Defeat MSA CaNADA -  a REGISTERED CHARITABLE Organization | PRIVACY POLICY

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