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AIDEZ-NOUS DEFEAT MSA MAINTENANT
Defeat Multiple System Atrophy (MSA) Canada/Vaincre L’atrophie Multisystématisée (AMS) Canada is a Canadian registered organization that aspires to balance efforts to support patients, educate medical professionals, raise public awareness, nurture promising research and advocate for the MSA community.
GIVE HELP, GIVE HOPE
- Help Us Support MSA Research in Canada!
- Help Us Support MSA Patients in Canada!
- Help Us Support MSA Awareness in Canada!
- Help Us Educate Medical Professionals in Canada!
4 Ways to Support Our Efforts:
1) Create a Facebook Fundraiser: https://www.facebook.com/fund/defeatmsacanada/
2) Create a Canada Helps Fundraiser (dedications to a loved one are possible too): https://www.canadahelps.org/en/charities/defeat-msa-multiple-system-atrophy-canada/
2) Donate Directly to Our Secure Website (dedications to a loved one are possible too): www.msacanada.ca/donate-to-us/
4) Via Cheque, Send to: Defeat MSA Canada/Vaincre AMS Canada, 3041 Dougall Avenue, Suite 208, Windsor, Ontario N9E 1S3
HELP US GIVE HOPE. CLICK OUR LINKTREE TO CHOOSE ONE A FUNDRAISER: https://linktr.ee/defeatmsacanada
NO AMOUNT IS TOO SMALL – BECAUSE EVERY AMOUNT GIVES HOPE TO THOSE THAT NEED IT!
Help Put Canada on the MSA Map! Help All Those Affected By MSA in Canada!
NOUVELLES MÉDIAS SOCIAUX
Defeat MSA Canada/Vaincre l’AMS Canada
Defeat Multiple System Atrophy (MSA) Canada/Vaincre Atrophie Multisystématisée (AMS) Canada aspires to balance support, education, awareness and research. Help Us Speak for Those That Cannot!
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Just posted a photo @ Bispebjerg, København, Denmark https://www.instagram.com/p/CdFBFgDsMyn/?igshid=YTgzYjQ4ZTY=
Starting @Roche on Monday. Excited about this new chapter! https://twitter.com/journal_PD/status/1514921795224281092
Our Co-Editor-in-Chief Patrik Brundin (@BrundinPatrik) has accepted a prestigious new position at @Roche & is stepping down from Journal of Parkinson's Disease. The whole team would like to thank him for his years of leadership and dedication! Read more: http://bit.ly/JPD-PatrikBrundin-news
Recherche sur l'AMS
Programmes pour les patients
MSA Education
Sensibilisation du public
Programmes de dons
À LA RECHERCHE D'AUTRES MOYENS DE PARTICIPEZ ?
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EXPERT MSA
SPOTLIGHT
Wouter Peelaerts, PhD
KU Leuven, Belgium
Dr. Wouter Peelaerts is an experienced neuroscientist with special expertise in degenerative brain diseases. He earned his Ph.D. in biomedical sciences from KU Leuven and subsequently completed a postdoctoral fellowship there focused on neurobiology and gene therapy under the mentorship of Prof. Veerle Baekelandt. His efforts helped uncover new insights that further link the abnormal protein alpha-synuclein to neurodegenerative diseases, in particular Parkinson’s and Multiple System Atrophy. He has received numerous accolades for his research, including the 2020 JiePie award for MSA research, a prestigious 2017–2019 Fulbright Fellowship and the ATCG and ID&T postdoctoral award. In 2017, he joined the lab of Dr. Patrik Brundin at Van Andel Institute, MI, USA. His current research focuses on drug repurposing and how infections can trigger Multiple System Atrophy. Dr. Peelaerts serves on the Scientific and Medical Research Advisory Committee for the six charities that make up MSA United International Consortium, which includes Defeat MSA Alliance (USA). He is Chair of the Alliance’s Scientific Research Section.
Liste des publications
Christopher T. Tulisiak, Mercado G, Peelaerts W, Brundin L, Brundin P. 2019. Chapter Seventeen – Can infections trigger alpha-synucleinopathies? Progress in molecular biology and translational science. Vol 168. Pages 299-322.
Quansah E*, Peelaerts W*, Langston JW, Simon DK, Colca J, Brundin P. 2018. Targeting energy metabolism via the mitochondrial pyruvate carrier as a novel approach to attenuate neurodegeneration. Mol Neurodegener 13:28.
*Contributed equally
Peelaerts W, Outeiro TF. 2017. Synuclein misfolding as a therapeutic target. Disease-modifying therapies and targets in neurodegenerative disorders. Academic Press.
Peelaerts W, Baekelandt V. 2016. ɑ-Synuclein strains and the variable pathologies of synucleinopathies. J Neurochem 139(Suppl 1):256–274.
Liens utiles
“Sticking With MSA” -Dr. Wouter Peelearts (Defeat MSA Alliance Blog Launch, April 2019)
Integrated DNA Technologies and Advanced Technologies and Community Giving Foundation award (2017)
FWO postdoctoral fellowship (2017 – 2020)
Annual Award for Movement Disorders, best scientific article published by a young investigator (2015)
sur la
Vaincre la chaussure de sensibilisation de la MSA - #KickMSA
La chaussure de sensibilisation Defeat MSA ™ a voyagé dans de nombreux pays, a côtoyé quelques personnalités et a visité de nombreux sites célèbres. The Shoe est un outil de sensibilisation à la MSA, qui permet d'accroître le soutien aux patients atteints de MSA et à leurs soignants et de lutter contre la MSA en recueillant des fonds essentiels pour la recherche. Son voyage est entrepris en mémoire de tous ceux qui sont morts de la MSA et en soutien à tous ceux qui luttent actuellement contre l'atrophie multisystémique !
Jusqu'à présent, la chaussure a "donné un coup de pied à la MSA" dans de nombreux pays du monde. Pour en savoir plus sur l'histoire et le voyage du MSA Awareness Shoe, cliquez sur l'onglet MSA Awareness ou visitez son site web : www.MSAshoe.org
#DefeatMSACanada #KickMSA #MSAcanada #DefeatMSA
sur la
Vaincre la chaussure de sensibilisation de la MSA - #KickMSA
La chaussure de sensibilisation Defeat MSA ™ a voyagé dans de nombreux pays, a côtoyé quelques personnalités et a visité de nombreux sites célèbres. The Shoe est un outil de sensibilisation à la MSA, qui permet d'accroître le soutien aux patients atteints de MSA et à leurs soignants et de lutter contre la MSA en recueillant des fonds essentiels pour la recherche. Son voyage est entrepris en mémoire de tous ceux qui sont morts de la MSA et en soutien à tous ceux qui luttent actuellement contre l'atrophie multisystémique !
Jusqu'à présent, la chaussure a "donné un coup de pied à la MSA" dans de nombreux pays du monde. Pour en savoir plus sur l'histoire et le voyage autour du monde de la chaussure de sensibilisation à la MSA, cliquez sur l'onglet "sensibilisation" ou visitez son site web : www.MSAshoe.org
#DefeatMSA #MSACanada #KickMSA #DeFeetMSA
Rejoignez le réseau mondial MSA Sensibilisation initiative
BESOINS DES BREVETÉS NOTRE AIDE
Defeat MSA Canada invite tous nos amis et alliés, partout dans le monde, à se joindre à nous dans ce noble combat, à parler au nom de ceux qui ne peuvent pas, avec un seul esprit, un seul cœur et une seule voix : vaincre MSA pour toujours !
Rejoignez le réseau mondial MSA Sensibilisation initiative
NOTRE HÉRITAGE SUBVENTIONS
NOS
HÉRITAGE
SUBVENTIONS
Le Vaincre la MSA Canada personne spéciale nommée Subventions d'héritage permet aux donateurs de financer une bourse de recherche scientifique, d'éducation médicale, de soutien aux patients ou de sensibilisation du public et de la nommer en leur nom propre, en hommage à une personne ou en mémoire d'un être cher. Le programme Subventions d'héritage désigne quatre niveaux de subventions : $10.000 (Platine), $8.000 (Or), $5.000 (Argent) et $2.000 (Bronze) en plus de Subventions d'héritage des collectes de fonds de départ à $1000 chacune. Veuillez nous envoyer un courriel : legacyfunds@MSAcanada.casi vous souhaitez en savoir plus sur ce cadeau durable.
MSA BLOGUE
Blog des aidants
"Anne Kastelic (Aide-soignante, Ohio)
Caregiver Blog Post #2 La voie du diagnostic... Sommes-nous déjà arrivés ?...Non Maintenant ?...Non Quand allons-nous y arriver ? Dit toute personne qui a fait un voyage en voiture. Notre voyage a pris 3 ans et demi pour qu'un médecin accepte un diagnostic de "MSA possible/probable" et nous avons vu ...
"Anne Kastelic (Aide-soignante, Ohio)
Caregiver Blog Post #2 La voie du diagnostic... Sommes-nous déjà arrivés ?...Non Maintenant ?...Non Quand allons-nous y arriver ? Dit toute personne qui a fait un voyage en voiture. Notre voyage a pris 3 ans et demi pour qu'un médecin accepte un diagnostic de "MSA possible/probable" et nous avons vu ...
Blog des chercheurs
MSA United Research Consortium Advisors
HELP DEFEAT MSA! Donate to A Consortium Partner: Defeat MSA Alliance - USA Defeat MSA/Vaincre AMS Canada Defeat MSA Australia and New Zealand, Ltd. (AU-NZ) Combattiamo AMS/MSA Italia Asociación Española Síndrome Shy Drager – Atrofia Multisistémica * Promising...
Lundbeck Launches Phase 2 Study for MSA
Good news from Lundbeck! The company plans to initiate Phase 2 Study for Potential Treatment for Multiple System Atrophy! --- Press Release (Mon, Nov 08, 2021 09:00 CET) H. Lundbeck A/S (Lundbeck), announces that it has expanded its clinical-stage pipeline and is...
Blog de l'avocat
Activists Profile: “Laughter is Indeed the Best Medicine” – Kathy and Karen’s Journey
It was 2010, with the holidays fast approaching. Kathy Samuel, Karen Olson’s sister, had just finished a 45-minute phone call with Karen’s doctor. “They told me we needed to say our goodbyes to her," Kathy said, remembering the day with vivid clarity. She called their...
REGISTER NOW – MSA VIRTUAL FREE CONFERENCE, SEPT 24-OCT 2
Defeat MSA Canada/Vaincre AMS Canada, Defeat MSA Alliance (US) and allied charities in the MSA United Consortium are pleased to announce the Second All-Community MSA Virtual Conference, Sept 24-Oct 2, 2021. This year's conference will include several exciting...
GET SOME GEAR & RAISE AWARENESS ALL YEAR LONG!
Defeat MSA Canada/Vaincre L’AMS Canada Board Member & MSA Patient Advocate Kelly Murphy tests out the new mug! Maybe a 'wee nip of something strong? Order One Now! www.MSAcanada.ca There are also online stores for some of our affiliated MSA United charites:...
Patient’s Blog
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Defeat MSA Canada is an amazing organization, giving voice to those affected by this little known, devastating disease. This grass roots effort grew as a work of love and devotion by its founders. Indescribable grief and suffering has been channeled into positive action to help fund vital research and provide support for others dealing with MSA. It is an important and worthwhile organization and I hope to see it continue to serve more and more Canadians in need.”
Elena Fracassa, MS
“The charity remains true to its objective of supporting patients and families living with this dreadful disease, through supporting vital research and helping to network to connect families affected by MSA. This disease does not have a marathon or a 5k run in its name; the charity uses an intriguing device: a traveling shoe as a symbolic marathon to spread awareness among lay public about this devastating disease. “
Dr. Pratik Bhattacharya, MD, MPH
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JOIGNEZ-VOUS MOUVEMENT AU #Vaincrel'AMS
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Resources & Downloads
Overview Known MSA Treatments
Known Treatments AMS (French)
Ressources médicales
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Brochure sur les organisations caritatives (anglais)
Brochure sur les organisations caritatives (anglais)
Patient Brochure (English)
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Autocollants de sensibilisation à l'AMS
Patient Card (English)
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Awareness Card (US Edition)
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