Brain donations could help researchers find the cause(s), more treatments and a cure for MSA. The examination of brain tissue is vital in this research process. A brain donation involves a simple procedure and it does not hinder the funeral or any burial plans. In some cases, the cost of brain procurement (when a technician removes it and sends it to a brain bank) can be offset by a grant from an institution or charity.
For many, a brain donation is the ultimate gift for generations to come – because MSA brain research could help bring about more treatments, more ways to help diagnose MSA and eventually, a cure!
If you are a patient and are considering a brain donation, please contact us, using the information below. There are multiple institutions in Canada, that are currently doing related brain research and desperately need brain and tissue donations. There is a place on the form to indicate a choice of brain bank.
NOTE — We will do our best to help facilitate a brain donation if possible. Unfortunately, in some cases, the cost associated with removing a brain may not be covered unless the patient was already treated at the designated institution. Such as is the case with Krembil Research Institute, they are unable to accept brain donations of others not treated at their institution.
Because Defeat MSA Canada is a registered charity organization, we do not collaborate with nor support any 3rd party profit-driven brain procurement organizations or companies.
Defeat MSA Canada does not require a fee nor do we solicit a contribution from you, in exchange for helping you donate a brain to any brain bank.
With respect to information about your power of attorney, generally speaking, brain banks request the POA contact details along with the contact information about the treating physician,
All information submitted on this form is strictly confidential. No specifics will be shared with the brain bank until we make our first contact and obtain your agreement to contact the brain bank for you. We can also provide you with the information necessary to contact the brain bank directly.
You can also call us toll free: 1 855 542-5672 (1 855 KICK-MSA) or email us: email@example.com
If calling, please leave your name, number, reason for your call and best time to return your call. Thank You!
Curious about the possible new drug being studied that might slow MSA? See this graphic for information about the mechanism of action (MOA). For Research Updates & More, Register on the Hub: https://defeatmsa.org/research-registry/ #defeatmsa #kickmsa...
November 23, 2020 WINDSOR, ON - Defeat MSA Canada/Vaincre L’AMS Canada, Defeat MSA Alliance: Defeat Multiple System Atrophy and MSA United International enthusiastically announce a new genetic study in partnership with the Canadian Open Parkinson's Network (C-OPN)....
By Lynne Krohn, PhD student, McGill University (Montréal, QC, Canada) A major goal in MSA research is to develop successful clinical interventions which can stop or slow the disease progression. Currently, there are options available for symptomatic treatment of MSA,...
A SPECIAL THANKS TO OUR MSA RESEARCHERS & HEALTH PROFESSIONALS AROUND THE WORLD!
LOOKING FOR OTHER WAYS TO GET INVOLVED?
JOIN THE MOVEMENT TO #DEFEATMSA
Follow us on social media
Follow us on Twitter
Follow us on Facebook
Follow us on Instagram
Follow us on YouTube
Follow us on social media
Follow us on LinkedIn
Resources & Downloads
Overview Known MSA Treatments
Known Treatments AMS (French)
Researcher & Mission Blogs
Charity Brochure (English)
Charity Brochure (French)
Patient Brochure (English)
Patient Brochure (French)
MSA Awareness Stickers
Patient Card (US Edition)
Awareness Card (US Edition)