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MSA
RESEARCH

BRAIN
DONATIONS

Brain donations could help researchers find the cause(s), more treatments and a cure for MSA. The examination of brain tissue is vital in this research process. A brain donation involves a simple procedure and it does not hinder the funeral or any burial plans. In some cases, the cost of brain procurement (when a technician removes it and sends it to a brain bank) can be offset by a grant from an institution or charity.

For many, a brain donation is the ultimate gift for generations to come – because MSA brain research could help bring about more treatments, more ways to help diagnose MSA and eventually, a cure!

If you are a patient and are considering a brain donation, please contact us, using the information below. There are multiple institutions in Canada, that are currently doing related brain research and desperately need brain and tissue donations. There is a place on the form to indicate a choice of brain bank.

NOTE — We will do our best to help facilitate a brain donation if possible. Unfortunately, in some cases, the cost associated with removing a brain may not be covered unless the patient was already treated at the designated institution. Such as is the case with Krembil Research Institute, they are unable to accept brain donations of others not treated at their institution.

Because Defeat MSA Canada is a registered charity organization, we do not collaborate with nor support any 3rd party profit-driven brain procurement organizations or companies. 

Defeat MSA Canada does not require a fee nor do we solicit a contribution from you, in exchange for helping you donate a brain to any brain bank.

With respect to information about your power of attorney, generally speaking, brain banks request the POA contact details along with the contact information about the treating physician, 

All information submitted on this form is strictly confidential. No specifics will be shared with the brain bank until we make our first contact and obtain your agreement to contact the brain bank for you. We can also provide you with the information necessary to contact the brain bank directly.

You can also call us toll free: 1 855 542-5672 (1 855 KICK-MSA) or email us: braindonation@msacanada.ca

If calling, please leave your name, number, reason for your call and best time to return your call. Thank You!

  • Contact Information

  • Power of Attorney Information

  • Physician Information

MSA
RESEARCHER BLOG

POSSIBLE NEW DRUG

Curious about the possible new drug being studied that might slow MSA? See this graphic for information about the mechanism of action (MOA). For Research Updates & More, Register on the Hub: https://defeatmsa.org/research-registry/ #defeatmsa #kickmsa...

“ANNOUNCING NEW MSA GENETIC STUDY IN CANADA”

November 23, 2020 WINDSOR, ON - Defeat MSA Canada/Vaincre L’AMS Canada, Defeat MSA Alliance: Defeat Multiple System Atrophy and MSA United International enthusiastically announce a new genetic study in partnership with the Canadian Open Parkinson's Network (C-OPN)....

THE EXPERTS

A SPECIAL THANKS TO OUR MSA RESEARCHERS & HEALTH PROFESSIONALS AROUND THE WORLD!

Dr. Patrik Brundin

Van Andel Research Institute, Grand Rapids, Michigan, USA

Dr. Edwin George

Wayne State University, Detroit, Michigan, USA

Dr. Pravin Khemani

Swedish Neuroscience Institute, Seattle, Washington, USA

Dr. Janice Holton

University College London, London, United Kingdom

Dr. Horatio Kaufmann

Dysautonomia Center, New York University, New York, New York, USA

Dr. Wolfgang Singer

Mayo Clinic, Rochester, Minnesota, USA

Dr. Eduardo Benarroch

Mayo Clinic, Rochester, Minnesota, USA

Dr. Shilpa Chitnis

University of Texas Southwestern Medical Center, Dallas, Texas, USA

Dr. Walter J. Koroshetz

National Institute of Neurological Disorders and Stroke (NINDS), National Institutes of Health, Bethesda, Maryland, USA

Dr. John Q. Trojanowski

University of Pennsylvania, Perelman School of Medicine, Philadelphia, Pennsylvania, USA

Dr. Paola Sandroni

Mayo Clinic Rochester, Minnesota

Dr. David Robertson

Vanderbilt Autonmic Dysfunction Center, Nashville, Tennessee, USA

Dr. Philip Low

Mayo Clinic, Rochester, Minnesota, USA

Dr. Praveen Dayalu

University of Michigan, Ann Arbor, Michigan, USA

Professor Gregor Wenning

Medical University, Innsbruck, Austria

Dr. Vik Khurana

Brigham and Women's Hospital, Harvard Medical School, Cambridge, Massachusetts, USA

Professor Eliezer Masliah

University of California, San Diego, California, USA

Dr. Matt Huentelman

T-Gen, Phoenix, Arizona, USA

Professor Glenda Halliday

Sydney Medical School, University of Sydney, Sydney, Australia

Dr. Aaron Ellenbogen

Michigan Institute for Neurological Disorders, Farmington Hills, Michigan, USA

Professor Werner Poewe

Innsbruck Medical University, Innsbruck, Austria

Dr. Un J. Kang

Irving Medical Center, Columbia University, New York, New York, USA

Dr. Charbel Moussa

Georgetown University, Washington, DC

Dr. Thomas Chelimsky

Medical College of Wisconsin, Wauwatosa, Wisconsin, USA

Dr. Ryan Walsh

Barrow Neurological Institute, Phoenix, Arizona, USA

Dr. Chuck Ide

Weestern Michigan University, Kalamazoo, Michigan, USA

Dr. Naill Quinn

University College London, London, United Kingdom

Dr. Roy Freeman

Beth Israel Deaconess, Boston, Massachusetts, USA

Dr. Michael Janitz

University of New South Wales, Sydney, Australia

Dr. Jeffrey Cummings

Cleveland Clinic, Lou Ruvo Center for Brain Health, Las Vegas, Nevada, USA

Dr. Joseph Jankovic

Baylor College of Medicine Medical Center, Houston, Texas, USA

Dr. Anthony Lang

Toronto Western Hospital Research Institute, Toronto, Canada

Dr. Jeffrey Kordower

Rush University, Chicago, Illinois, USA

Dr. Sid Gilman

Hope Clinic Ypsilanti, Michigan, USA

Dr. Glenn Cook

Director, Walter Reed National Military Medical Center, Clinical Neurocardiology Section, NINDS, NIH

Dr. Peter LeWitt

Henry Ford Health System, Detroit, Michigan, USA

Dr. Steven Vernino

University of Texas, Southwestern, Dallas, Texas, USA

Professor Florian Krismer

Medical University, Innsbruck, Austria

Dr. Wassilios Meissner

University Hospital Bordeaux, Bordeaux, France

Dr. Jeremy Schmahmann

Massachusetts General Hospital, Boston, Massachusetts, USA

Dr. Ronald Melki

Paris-Saclay Institute of Neuroscience, Saint-Aubin, France

Professor Shoji Tsuji

Medical Genome Center, University of Tokyo Hospital, Tokyo, Japan

Dr. Michael Schlossmacher

Ottawa Hospital Research Institute, Ottawa, Ontario, Canada

Professor Gal Bitan

University of California - Los Angeles, Los Angeles, California, USA

Dr. Wendy R. Galpern

National Institute of Neurological Disorders and Stroke at the National Institutes of Health in Bethesda, Maryland, USA

Dr. Virginia Man-Yee Lee

University of Pennsylvania, Philadelphia, Pennsylvania, USA

PHARMACEUTICAL
ENGAGEMENTS

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Copyright 2020 | Defeat MSA CaNADA -  a REGISTERED CHARITABLE Organization | PRIVACY POLICY

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