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ZuluPATIENT
PROGRAMS
MSA
CAREGIVERS BLOG
Joe and Anne Kastelic
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“Are we there yet?..No”- Anne Kastelic (Caregiver, Ohio)
Caregiver Blog Post #2 The road to diagnosis... Are we there yet?...No Now?...No When are we going to get there? Said anyone who has taken a road trip. Our trip took 3 1/2 years to get a doctor to agree to a diagnosis of "possible/probable MSA" and we were seeing...
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio)
“But I’d of had to miss the dance…” – Anne Kastelic (Caregiver, Cleveland, Ohio) Today I opened Facebook to see a call for a caregiver writing opportunity for Defeat MSA’s “Caregiver’s Blog.” The idea is to share our story in an effort to help others on the MSA...
PATIENT
BLOG
Joshua Calvert
New MSA/AMS Patient Advocate On National Canadian TV !!!
We are grateful to MSA/AMS Patient Advocate Valerie Garneau. Valerie is the new Patient Advocate & Board Member for Defeat MSA/Vaincre AMS Canada. She spoke on national French Canadian TV about Multiple System Atrophy to raise awareness! Thank you Valerie for your...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
“Finding Balance with MSA” – Joshua Calvert (Patient, Australia)
My name is Josh I am 46 years of age. My passions include surfing gardening, travelling, and cooking. I worked as registered nurse for 24 years both in Australia and the United Kingdom. I have been married for 20 years and have a 14-year-old son. I live in Illawarra...
FACEBOOK
ONLINE GROUPS
FOR ALL POLICIES RELATED TO DEFEAT MSA UNITED HOSTED ONLINE AND VIDEO CHAT GROUPS, VISIT THIS PAGE
PRIVATE DEFEAT MSA ALLIANCE/MSA UNITED GROUPS:
https://www.facebook.com/groups/MSAtreatments/
(Defeat MSA Global – MSA Related Treatments, Research & News)
MSA – A Caregivers Journey
https://www.facebook.com/groups/msacaregivers/
MSA Patient Life Affirmations
https://www.facebook.com/groups/msalifeaffirmations/
MSA Clinical Trials
(contact Defeat MSA for admission: defeatmsa@gmail.com)
http://www.facebook.com/groups/MSAgenetics/
(MSA Research Into Genetics Question Discussion)
https://www.facebook.com/groups/DefeatMSADownUnderGroup/
(Defeat MSA Down Under – Australia & New Zealand)
https://www.facebook.com/groups/MSA.Forever.Friends/
(MSA Forever Friends)
https://www.facebook.com/groups/MSApatientLoaners/
(Defeat MSA Medical Equipment Loaner Closet Program Group)
https://www.facebook.com/groups/DefeatMSAfamily/
(Defeat MSA Family Friends & Volunteers)
https://www.facebook.com/groups/MSAbrothersandsisters/
(Defeat MSA Brothers and Sisters Group)
https://www.facebook.com/groups/MSA.Youngins/
(Defeat MSA Young Onset)
https://www.facebook.com/groups/defeatmsalgbt/
(LGBTQ – Defeat Multiple System Atrophy Alliance)
https://www.facebook.com/groups/KickMSA/
(Kick MSA To Raise Awareness)
https://www.facebook.com/groups/atrofiamultisistemica/
(Atrofia Multisistemica – Spanish MSA Central & South America Group)
https://www.facebook.com/groups/AngelsMSA/
(MSA Angels, Prayers & Spirituality)
https://www.facebook.com/groups/SupportMSA/
(Support Cause – Defeat MSA)
https://www.facebook.com/groups/MSAunitedindia/
(MSA South Asian Greater India Region)
https://www.facebook.com/groups/NordicStates/
(Nordic Region MSA)
https://www.facebook.com/groups/MSACentralEurope/
(MSA Central Europe)
https://www.facebook.com/groups/2587300801546835/
(Defeat MSA Italy – Combattiamo L’AMS)
https://www.facebook.com/groups/763513260457173/
(MSA Awareness Bracelets By Kym)
https://www.facebook.com/groups/MSAawarenessTourUK/
(Defeat MSA Awareness Shoe Tour – UK & Irealand)
DEFEAT MSA UNITED STATES GROUPS:
https://www.facebook.com/groups/defeatmsamidwest
(Defeat MSA Midwest States Friends)
https://www.facebook.com/groups/defeatmsamountain/
(Defeat MSA Mountain States Friends)
https://www.facebook.com/groups/defeatmsanortheast/
(Defeat MSA Northeast States Friends)
https://www.facebook.com/groups/defeatmsasouthwest/
(Defeat MSA Southwest States Friends)
https://www.facebook.com/groups/defeatmsamiddleatlantic/
(Defeat MSA Middle Atlantic States Friends)
https://www.facebook.com/groups/defeatmsapacific/
(Defeat MSA Pacific States Friends)
DEFEAT MSA CANADA GROUPS:
https://www.facebook.com/groups/MSA.AMS.Canada/
(Defeat MSA/AMS Canada National)
https://www.facebook.com/groups/MSACanadian.prairies/
(MSA Canada – The Prairies)
https://www.facebook.com/groups/MSA.Canada.BC/
(MSA Canada – British Columbia)
https://www.facebook.com/groups/MSA.Canada.territories/
(MSA Canada – The Territories & Alaska)
https://www.facebook.com/groups/MSA.Atlantic.Provinces/
(MSA Canada – Atlantic Provinces)
https://www.facebook.com/groups/280874549302384/?ref=share
(AMS/MSA Canada – Quebec)
DEFEAT MSA ALLIANCE PAGES:
https://www.facebook.com/DefeatMSA/
(Defeat MSA – USA Page)
https://www.facebook.com/MovementDisorderMilestones/
(Milestones for MSA Page)
https://www.facebook.com/msadownunder/
(MSA Australia and New Zealand – Defeat MSA Down Under Page)
https://www.facebook.com/MSAshoe/
(Where is the MSA Awareness Shoe?)
https://www.facebook.com/Memes4MSA/
(Memes & Graphics Related to MSA)
https://www.facebook.com/defeatmsaunited/
(Defeat MSA United International Page)
https://www.facebook.com/msaawarenessmonth/
(MSA Awareness Month Group)
https://www.facebook.com/NeurologyByDoctorB/
(Neurology By Doctor B Page)
https://www.facebook.com/defeatmsacanada/
(Defeat Multiple System Atrophy Canada)
https://www.facebook.com/msaitaly/
(Defeat MSA Italy – Combattiamo L’AMS)
https://www.facebook.com/laughterismed/
(Laughter is the Best Medicine)
https://www.facebook.com/EatCake4MSA/
(Annual Cake-4-a-Cure Campaign By Defeat MSA Alliance)
https://www.facebook.com/groups/defeatmsalgbt/
(Gay, Lesbian, Bisexual, Transgender & Allies MSA Group – LGBTQ)
DISCLAIMER
Any of these online pages published by MSA Canada are for informational and support purposes only. The information presented in them should not be used for suggesting any diagnosis or understood as recommending any medicines, tests or treatments. Every visitor should consult with his/her doctor or other health care provider for any medical condition.
Furthermore, MSA Canada has used all reasonable care to protect your privacy, ensure confidentiality and maintain a safe and secure online presence. For questions about the website or information contained therein, contact: info@msacanada.ca
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